Jesy Nelson has released deeply moving footage showing the devastating moment she discovered her twin daughters had been diagnosed with spinal muscular atrophy.
The emotional scenes were captured by cameras filming her forthcoming Amazon Prime Video documentary, Jesy Nelson: Life Changing.
The former Little Mix singer shared the trailer on social media, offering viewers a glimpse into what she has described as “the most heartbreaking series I’ve ever had to make”.
Ms Nelson has since transformed her personal tragedy into a nationwide campaign for mandatory newborn screening for the rare genetic condition.
Jesy Nelson gave birth to Ocean Jade and Story Monroe Nelson-Foster in May 2025 | INSTAGRAM
In the video, a medical professional can be heard delivering the devastating news that genetic testing had confirmed a positive result for spinal muscular atrophy.
The footage shows Ms Nelson immediately covering her face with her hands upon hearing the diagnosis, visibly overwhelmed by the information.
“I can’t believe this is happening,” she said in the clip, struggling to process what she had just learned.
The Amazon Prime Video production team had been present to document the former girl group member’s journey, capturing her raw and unfiltered response as she confronted the reality of her daughters’ condition.
Jesy Nelson has continued to update fans on her babies’ diagnosis | INSTAGRAMThe NHS describes SMA as “a rare genetic condition that can cause muscle weakness,” with the health service noting that the condition worsens progressively over time.
Ms Nelson admitted the diagnosis had completely upended her life, with the footage showing her struggling to come to terms with what lay ahead.
“I don’t know how I’m going to do this,” she stated, her face buried in her palms.
“I feel like I’m going to be heartbroken for the rest of my life.”
Despite her anguish, the singer has vowed to channel her pain into ensuring other families do not endure the same experience.
Ms Nelson has channelled her grief into advocacy, launching a petition demanding that all newborns in the UK be tested for spinal muscular atrophy, which has now attracted more than 150,000 signatures.
Last month, she attended Westminster while MPs debated the introduction of universal SMA screening for babies.
The singer has continued to update her followers on her daughters’ progress via social media, emphasising the importance of early detection.
“Early diagnosis can change EVERYTHING,” she wrote.
“I’ll keep saying it until no family has to experience this again: no future babies born with SMA should have lives that look like this.”
Fans of the star were quick to fill her comments section with support.
The X Factor star left Little Mix in November 2020 | Little Mix
“Feeling heartbroken for the rest of your life…..I get that,” one person wrote, as another penned: “Love you girl this truly breaks my heart.”
A third penned: “Your babies are so lucky to have you as their mummy.”
Someone else said: “That’s an emotional trailer!! Look how far you’ve come in just a short space of time.”
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